Conversations

Caring for someone living with dementia is hard and at times lonely. Family and friends are not the only support that is accessible.  In this section I convey conversations with other people who can be part of the support system.   

When my mother was first diagnosed with Alzheimer’s Dementia, we were provided support by Alzheimer’s Society.  We were assigned a Dementia Advisor; Shuhala Abbas, who was there for the duration of the journey.  Shuhala was my ‘go to’ person whenever I had any dementia related question.  Whilst she could not remedy my mother’s condition, she helped me deal with specific issues that I faced with her.  Towards the end of mum’s life, she was more of a support for me than mum as there was really nothing else that mum wanted or needed.

I asked Shuhala if I could document and publish her perspective on our journey and she kindly agreed. It is written in a manner that reflects her having a conversation with me.