Information & Resources
The world of dementia can be overwhelming and confusing. This page is dedicated to providing resources and go-to organisations that can help with advice and information focused on all facets of dementia from the medical aspect of the disease to end of life care. It is by no means an exhaustive list so more will be added in time.
It is divided into 3 sections; websites, videos and downloads. More resources will be added as and when available. Please click on the links below for further information:
Websites
ALZHEIMER’S SOCIETY UK
Alzheimer’s Society is a UK care and research charity for people with dementia and their carers. It operates in England, Wales and Northern Ireland, while its sister charities Alzheimer Scotland, and Alzheimer Society of Ireland cover Scotland and the Republic of Ireland respectively. Source: Wikipedia
Read more: https://www.alzheimers.org.uk
ALZHEIMER’S RESEARCH UK
Alzheimer’s Research UK is a dementia research charity in the United Kingdom, founded in 1992 as the Alzheimer’s Research Trust. Source: Wikipedia
Read more: https://www.alzheimersresearchuk.org/
DEMENTIA UK
Dementia UK is a charitable organisation in the United Kingdom. It aims to support those living with dementia and their families, primarily through their specialist nurses, called Admiral Nurses. As of 2022, they have 376 Admiral Nurses working throughout the UK. Wikipedia
Read more: https://www.dementiauk.org/
CARERS TRUST
The Carers Trust is a charity in the United Kingdom which supports carers. It works with a network of partner organisations to help carers with the challenges of their caring roles. Source: Wikipedia
Read more: https://carers.org/
AGE UK
Age UK is a registered charity in the United Kingdom, formed on 25 February 2009 and launched on 1 April 2009, as a merging of Age Concern England and Help the Aged. Source: Wikipedia
Read more: https://www.ageuk.org.uk/
SAMARITANS
Samaritans is a UK based charity that supports people who have depression and suicidal thoughts. They are available to provide support on the phone, by email or in person at one of their locations.
Read more: https://www.samaritans.org/
MERI YAADAIN BAME DEMENTIA
Dr Mohammad Akhlak Rauf MBE has been a voice for the ethnic minorities in terms of providing advice and consulting to families with persons with dementia. He is involved in research, as well as spreading the word about dementia.
Read more: www.meriyaadain.co.uk
ALZHEIMER’S ASSOCIATION (US Based)
According to their website ‘Alzheimer’s Association is the leading voluntary health organisation in Alzheimer’s care, support and research.’
Read more: https://www.alz.org/media/documents/alzheimers-facts-and-figures-infographic.pdf
ALZHEIMER’S DISEASE INTERNATIONAL (US Based)
Alzheimer’s Disease International, according to their website is ‘the international federation of Alzheimer and dementia associations around the world; in official relations with the World Health Organisation (WHO)’.
Read more: https://www.alzint.org/about-us/
WORLD HEALTH ORGANISATION
Read more: https://www.who.int/news-room/fact-sheets/detail/dementia
Videos
Kayleigh Ogleby lost her mother to dementia in 2025. She has been spreading awareness of the disease via her tiktok account and recounting her journey with her mother’s illness. Please check out her tiktok account:
@kayleighogleby
Debra Kostiw, an ex-caregiver of her mother who had Alzheimer’s Dementia, realised that there was a need for information/courses on how to deal with a person living with dementia from a practical perspective. She provides courses, videos and access to Q/A lives where she addresses some of these issues. One of her programs is a called the Certified Masters Dementia Strategist. Debra is based in the USA.
Read more:
Other dementia related accounts to follow on social media:
@yourdementiatherapist
@dr_kellyn
@drclintsteele
@tobytheneuroscientist
@belightcare
Downloads
University College London established a program, called START (STrAtegies for RelaTives). Following trials it was supported by Alzheimer’s Society, University of Bradford and University of Exeter. There are manuals in various languages that can be downloaded from the UCL website.
Read more:
https://www.ucl.ac.uk/psychiatry/research/mental-health-older-people/projects/start