About Dementia Sphere
Your community for caring, sharing & hope
Welcome to Dementia Sphere! The idea started as a personal story focusing on my mother’s life with Alzheimer’s Dementia from my perspective as a care giver in the South Asian Community. Initially I was going to focus solely on our journey and what it entailed. I remember the experience being extremely difficult; feelings of loneliness and being alone experienced by both of us. It also occurred to me that given the rising cases of dementia globally and the likelihood of greater prevalence in the South Asian Community, I couldn’t be the only person feeling the way I was. I often asked the question, where do I go, who do I speak to and who will hear me let alone understand me? I hope that by sharing our story you may resonate with some of the issues and take some comfort in the words and when appropriate, share your experience with us here on Dementia Sphere.
The aim of Dementia Sphere is not only to tell my story but allow others to contribute to it with their thoughts, knowledge and experience and help build a community and safe place for opinions to be expressed. In some ways, I hope it will serve as a voice for others and create a greater understanding in the wider community. I hope you can take something from it, share your thoughts and possible issues you’ve faced so that the community can grow and support one another
The website has 3 key areas of focus;
- Million Squares Project
- Stories
- Info & Resources
In the Millions Squares section I describe the project from conception to process of implementation, how to participate and help with creating squares. This project is aimed at spreading awareness and building communities within the UK.
The Stories section provides narratives from both myself and others who have experienced or are currently experiencing life with a loved one who has dementia. The aim of these stories is to provide insights about caring for someone with dementia and the challenges that are faced.
The Info & Resources section provides information on dementia related topics, links to other websites with useful contact names & numbers and social media handles as well as organisations that provide support to carers and family members.
About the Logo
When I developed the logo, I wanted it to be simple, easy to remember and recognizable. Dementia is a disease that affects the functionality of the brain, hence I chose to use the brain icon. The various areas that could be affected by it are depicted by using different colours. The icon is also easy to identify whatever the size, be it on a poster or business card.
In terms of the name ‘Dementia Sphere’, a sphere is a three-dimensional circle. I believe that dementia needs to be addressed in a similar fashion. For a person with the disease, one needs to treat them from a holistic perspective, mentally, physically and emotionally. It affects and impacts the person, their immediate family and others around them. I therefore believe that ‘Dementia Sphere’ accurately encompasses the different aspects of the disease and provides me with the opportunity to write about them.